The worst part about being chronically ill is the inability to explain what it’s like to those who are not, (especially one that is 80% of the time invisible to others’ detection). A click of understanding is tangible. You feel when it’s there…and when it’s not. No matter the “good intentions” or the sympathy.
I remember being on the other side of the wall years ago, trying to understand my friends who were ill. How far away I was from understanding, though I really did try…. If there is one thing I would never trade, it is the knowledge I now have of what this is like. In the mean time, I’ll keep trying to find ways to show, explain. It’s the least–and most–I can do for all the others who are suffering and will suffer this way.
Without understanding, there can only be loneliness….